We’re ready for you to join!
There you go. This link should take you to our team page. From there you can click “Join Our Team”, then you’ll be on your way to awesomeness. We are really excited to do this, and the fact that you’ll be joining us will make this walk that much better. Of course, it’s our first time initiating something like this so we’re also a little nervous. Having you along for the ride will make things a little easier too. We even have someone doing some work on a t-shirt design for us! Once that’s all worked out I’ll get you all to email me your sizes so we can be awesome and look awesome.
We’ve set what we believe is a pretty reasonable goal of $1,000 for our team to raise. Of course, the more of you that join us the easier this will be to reach. I think it would be great if this turned out to be too conservative and we blow that number out of the water.
After Declan’s surgery the Neurosurgeon talked with us for a while about the device that Declan had implanted, a shunt. We talked about how great it is, and how many lives it has saved. We also talked about the fact that the technolgy really hasn’t changed much since it was invented about 50 years ago. He said that there is a lot of research going into finding new treatments for hydrocephalus, and hopefully someday even a cure. He said, “Wouldn’t it be great if he could just take a pill for this?” It would be great, and that’s why we’re doing this. I hope that someday people will no longer have to have brain surgery, in most cases multiple brain surgeries, for this condition. This will only happen if there are people researching new treatments, and this research will only happen if there is money to support it.
Thanks for doing something to make this happen.
As a reminder registration is $25. Kids 12 and under are free. The walk is on Sunday, 11/20. Check in is from 6:30 to 8:oo am at West Potomac Park in DC. The walk starts at 8:oo am. It will definitely be an early morning, but I’m sure the “crisp” November air will wake us right up. We’re thinking about getting a hotel room for the night nearby to avoid the early morning drive. If this is something you’d be interested in let us know and maybe we can all stay in the same place.
Posted on September 20, 2011, in Awareness and tagged hydrocephalus, shunt. Bookmark the permalink. 2 Comments.
You know that you can save the $$ on the hotel and sleep at my house. You and the kids can have my bed and I’ll crash on the couch! I live pretty close to DC and you’d be welcome there. ❤
That is very nice of you! We may take you up on it. We were thinking about staying in a hotel as kind of an adventure/vacation, but it sure isn’t cheap. Let me see how our money is next month and I’ll let you know for sure, if that’s OK. It would be fun to hang out and catch up.
If you have the time and inclination we’d love for you to join us on the walk too.